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Regarding the "statement" signed by all those "ethicists" (my emphasis on the latter): Have they also signed up to take turns to help Ashley's parents deliver the care she needs, or found a similarly impared person in their community to help in such a way? It is so very easy to plunk a signature on a form registering distaste for someone else's actions. But putting your money and time on the line for your beliefs takes more committment.
But the reality of Ashley's care needs must be crushing. And all the nattering naysayers here and elsewhere haven't a CLUE what that entails. And until these people can stand up and show how they have contributed in a concrete way (hours of respite care donated, etc.,) they should STFU, IMO
You can go on all you want about "feminist issues", "disabled issues" and "rights of children", blah, blah, blah, but in the end it all boils down to a little vulnerable being whose world is just familiar faces, sounds, smells and touches, and her parents who love her and have committed to care for her as long as they can. These procedures have ensured that that can happen. It isn't' any more sinister than that.