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Shame on you!! How dare you second guess devoted parents who want nothing but the best for their child. Walk in their shoes for a month and then write your article. I have a granddaughter with Aicardi syndrome who will live a life much like Ashley. My daughter and her husband are devoted to that child - as are Ashley's parents to her - believe me such parents do not make decisions lightly and when they do it is for the child they love and adore. Only they have the right, with the professional doctors, to decide the best treatment. Do you wnat some special interest group deciding how you care for your child?