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When I first heard this story, I, too, was a bit horrified. Then I followed a link to their website and came to the conclusion that they love their daughter and are trying their best under awful circumstances. So they call her their "Pillow Angel." Would you have selected the same pet name? Probably not, but so what? You may call your children names that I wouldn't call mine. Lucky for you such details about your family's life haven't been exposed to the world for ridicule.
I'm entirely with TruCarMa, here. I'm boggled by the presumptuousness of people who have decided that the choice of "Pillow Angel" as a nickname means that her parents view her as less than human. If anyone on earth is keenly aware of Ashley's humanity, it's her parents. To quibble about the endearment they choose for her is petty in the extreme.