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Since you're a journalist, have you considered writing an article about your experience and this problem? Maybe submitting it to Salon?
I don't mean to be flip, and I don't know if the time spent would be worthwhile, financially speaking, but it is another aspect of the same situation, and it's only going to get worse for all of us.
I think it's unfair to lambaste Shulman. If your spouse--the person with whom you've probably spent an enormous chunk of your life and with whom you expect to spend the rest--is suddenly mentally incapacitated, it's devastating, no matter how much money and time you have to throw at his care. Materially speaking, she's suffering less, but I'd hardly call her fortunate. And it will probably end up cleaning her out too, sooner or later. There's cold comfort in that, I suppose.